I Am: Celine Dion documentary offers fans an insight into the singer’s battle with Stiff-Person Syndrome (SPS) and her unwavering determination to return to the stage. In a recent interview with Hoda Kotb, Celine opened up about how challenging this period has been.
Its a song that Ive never sung before
, she shared, emphasizing her commitment to addressing her health and preparing herself for future performances. Kotb’s exclusive interview will be aired on NBC News Primetime on June 11, providing a sneak peek into Dion’s journey.
Health Struggles and Resilience
Dion’s diagnosis with Stiff-Person Syndrome, a rare autoimmune disorder, was life-changing. As she stated, It took 17 years for me to go back on stage
, highlighting the long path she’s traveled. Not just physically debilitating, SPS also affected her voice, impacting her ability to sing at her usual high standards. Despite this, she remained steadfast in her passion: I miss it so much. The people, I miss them. If I cant run, Ill walk. If I cant walk, Ill crawl.
The documentary doesn’t shy away from showing these struggles, offering viewers a raw and intimate look at her battles off the stage.
A Journey Shared with Hoda Kotb
During their conversation, Hoda revealed that Dion called this experience her most challenging yet:
Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life
. The film captures Dion’s ongoing process of rehabilitation—physically, emotionally, and vocally—as she strives to adapt and live as normally as possible.
Dion’s Inspiring Message
Celine hopes that her story will raise awareness about SPS. She stated, I hope that the documentary doesnt frighten people but awakens people to SPS
, aiming to encourage those experiencing similar symptoms to seek medical advice earlier.
As she reiterated in a poignant moment from the trailer,
I dont know if you know me well enough…
, reflecting her desire for viewers to understand and empathize with her journey on a deeper level.
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